My Road to Normal (Whatever That Means) By Ayden (Age 9)

SheetsHello I’m Ayden. I am nine and I was born with bilateral cleft lip and palate. My first surgery was in my mouth when I was only six months old. I have had about 5 surgeries so far. I will be having more surgeries up in to my twenties. I was also born with no upper jaw, or bone or cartilage in my nose. I have an upper jaw now because two years ago my team of doctors cut a piece of bone out of my hip and put it in my mouth. The next surgery I will have is in February 2015 and they are going to rebuild my nose so I have a tip and also make it skinnier. Right now, my nose is really flat. There are also two holes in the roof of my mouth. They were able to close one of the holes during my last surgery, but the other one has teeth growing in it. Another step is that I am going to be getting braces soon. My teeth are all over the place on the top, so the doctors said I will have to have them for a few years.

Today, I can tell you that all my surgeries have helped me now and will help me in the future. I will be having a lot more surgeries that I’m sure will also help me. My Mom takes me to all of my appointments and surgeries which makes me feel better. As a special treat, we always visit the gift shop in the hospital. I like gym and skateboarding. I love to be outside and being active. My favorite thing to do is go up north or visit my grandma’s house. All of the imperfect things I have doesn’t change the way that I do things. Some people stare because I look different, and that is ok. It does not bother me a whole lot, because they look different too! The surgeries I have had I only like the change I don’t like the pain. I wish there was a way I could look like the surgery was done but without the pain. The most painful surgeries was when I was a baby, I think those were the worst!

But I am very thankful for all of my doctors that work hard on making me look as normal as possible. Whatever that means.

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5 Responses to “My Road to Normal (Whatever That Means) By Ayden (Age 9)”

  1. BeckyOctober 22, 2014 at 1:00 pm #

    Thank you all for helping me to celebrate that we each have differences. I love what you share with us here. It is fabulous to meet you through, at least this website.

    • MegZuckerOctober 22, 2014 at 8:51 pm #

      Becky so thrilled to hear from you –many thanks re-the website and our efforts to celebrate difference with you all. Best,

      • BeckyOctober 27, 2014 at 10:22 am #

        Feel free to remove one of my comments, if it is too repetitive. I misunderstood something and thought that a comment had not been received.
        I love what I’m reading on all of this site! I’m going to share this site with others.
        You are reminding me of a speech I recently heard from Dr. Larry Crabb. He was sharing from His recently published book, Fully Alive. He wants us to all live beyond the unfulfilling limits we have placed on ourselves and others.
        Thank you again for inviting us into your heart.

      • MegZuckerOctober 29, 2014 at 6:43 pm #

        thanks Becky I will have to look Dr. Crabb up. Be well…

  2. BeckyOctober 22, 2014 at 12:57 pm #

    I love all of you. Thank you for opening up my heart to differences and the ways we are each different. Your journeys thrill me. I’m very honored to meet you, at the very least, in what you share with us all here.

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