If you want to get a taste of what it’s like to have a visible difference, try walking around with a big bandage on your nose for a few weeks. I recently had some minor surgery on my nose and my bandage has been yielding some interesting reactions from people. Let’s start with people who […]
Aaah the Jersey Shore! Fist pumping and Snookie Smoosh aside, the month of July has always been a great time when you live in New Jersey. I grew up a Jersey Girl and have fond childhood memories of visits to the shore as a child. Reading Meg’s blogs about exposing her feet at the beach […]
I am the Stacey that Meg refers to in her blog “Pay it Forward.” Meg and I are good friends. She usually takes the bus to work in NYC and I take the train. But sometimes Meg takes the train and I am always excited when Meg joins me so we have a chance to […]
Our situation starts as most family holidays do… For some months we had meticulously planned how we would spend our time at Disneyland Paris for what would be this years ‘big holiday’. We’d been once before, the difference this time being that we were now a family of four, and that Isabella, our eldest child, […]
I have a great husband, a spunky toddler son and a job I love. All the things you hope for as a little girl. They were things I was not sure I would get since I am different. I was born with arthrogryposis multiplex congentia and it mainly affected my hands and legs – I […]
Friends. They say you can’t have too many friends. Of all the things “they” say, this may be the statement I believe in the most. Being the father of a special needs son, I’ve learned a lot about friendship. My son is affected by a rare syndrome known as Ectodermal Dysplasias. Each year my wife […]
Of all the posts I’ve read on Meg’s blog, “Pay It Forward” gave me the greatest pause. I’ve known Meg since our undergrad days at UW Madison – halcyon days when we believed the future and our dreams to be limitless. In “Pay It Forward,” Meg’s encounter with the conductor who offered her a “disabled” […]