I have Tourette Syndrome (Tourette’s). Tourette’s is a neurological movement disorder. For me it means that I have “Tics” (not the bugs) which are movements and noises that I can’t control. For a lot of my childhood, having Tourette’s felt like a negative. My Tourette’s was so severe that not only did I flail and […]

Things have been kind of tense because of COVID-19, but National Siblings Day approaches just as it does every year. I await the day to honor the bond I have with my twin brother, Brian. Growing up with a brother like Brian has taught me to commemorate the beauty in the basic concepts others take […]

“Wow! That’s a GIANT Woody!” I never would have imagined that one single outburst in reaction to seeing an oversized ‘Toy Story’ Woody doll in a Target in Minneapolis, MN would bring me two lifelong friends. Lifelong friends that came from different places, at different phases in their lives. One in Connecticut, one in Colorado. […]

“She’s beautiful!” cried my mother, her face wet with tears as she caressed my tiny cheek. The baby that caused her and my father countless sleepless nights had finally arrived. Soon this special moment ended when medical school students entered the room to see a newborn with cleft lip and palate. Cleft lip and palate […]

When I was twenty-seven years old, I was in a fire. I was severely burned and spent six weeks in the hospital. I had five years of plastic surgery, seven years of litigation. I went into shock. It took twenty years to gain any semblance of emotional stability. Now seventy-nine, I’ve survived several things since […]

My name is Tracy Williams. I live with mild-moderate cerebral palsy and chronic obstructive pulmonary disease. Cerebral palsy affects my lower extremities, fine motor skills and my rate of speech, but not my cognitive ability. Due to four orthopedic procedures during my childhood, I did stop growing at the age of twelve. This is why […]

“My name is Laurie Zappulla and here is my pitch!”  That is the opening line for all TEDx speakers and I voiced my pitch this past March. In 1979, a week before my freshman year of college, I jumped into a swimming pool and broke my neck.  At that moment, I didn’t have to wonder […]

We were huddled around her incubator four days after Callie’s open-heart surgery. It had only been seven days since her birth. I stared at the three-inch scar that covered her tiny little chest and tried to keep my worry in check but it was extremely hard. Callie was hooked to a million tubes and wires […]

On April 10, brothers and sisters around the country celebrate National Siblings Day to honor the special bond that exists between siblings. On this day, siblings spend time with each other and reflect on memories shared together. Many siblings also post stories, pictures, and videos on social media using the hashtag #NationalSiblingsDay. National Siblings Day […]

Growing up, it’s easy to say that the favorite part of your day was getting a good grade on a test in school or soccer practice with friends. But more and more, it’s the quiet moments I cherish the most, especially with my brother Jacob. Being away from home for college is especially tough because […]

Five years before I arrived, my brother Nick was born and was later during a routine exam diagnosed with taxoplasmosis, which meant he had been born with holes in his brain. In a rare number of people including my brother, it impacted eye issues too. My mom has always been an extremely strong woman; she […]

My older brother Matthew is autistic. When he was two years old, he was slow to develop cognitive skills. My parents knew something was wrong. He was formally diagnosed shortly thereafter, and after a subsequent battery of tests, my parents faced the devastating reality that he would never be able to enjoy an independent life. […]

I grew up in Los Angeles just off of Doheny Drive North of Sunset in a location known as Lower Bird Streets or “Doheny.” I initially went to Stephen S. Wise elementary and then Brentwood School. But from an early age all I wanted to do was real estate, so I was asked to leave […]

My husband Andy and I got pregnant with Matthew after three years of trying to conceive.  When we found out we were pregnant we were overjoyed. Excitedly, I went out and bought books for us to learn what to expect during pregnancy.  As far as we were concerned, we were preparing to parent a healthy […]

My first son, Noah, was born on March 12, 2000 with Down Syndrome. The tests administered during pregnancy for Down Syndrome and other conditions somehow didn’t indicate Downs – so, yes, Noah’s condition was certainly a surprise. Frankly, for the first 24 hours Noah’s condition was a dramatically negative surprise to me and to my […]